Consent examples for UGR

Consent/Consent-UGRConsentForResearch-Example.json

@@ -0,0 +1,63 @@
+{
+  "resourceType" : "Consent",
+  "id" : "Consent-UGRConsentForResearch-Example",
+  "meta" : {
+    "profile" : [
+      "https://profiles.ihe.net/ITI/PCF/StructureDefinition/IHE.PCF.consentBasic"
+    ]
+  },
+  "status" : "active",
+  "scope" : {
+    "coding" : [
+      {
+        "system" : "http://terminology.hl7.org/CodeSystem/consentscope",
+        "code" : "patient-privacy"
+      }
+    ]
+  },
+  "category" : [
+    {
+      "coding" : [
+        {
+          "system" : "http://loinc.org",
+          "code" : "59284-0",
+          "display" : "Consent"
+        }
+      ]
+    }
+  ],
+  "patient" : {
+    "reference" : "Patient/Patient-MeirLieberman-Example"
+  },
+  "dateTime" : "2025-04-24",
+  "performer" : [
+    {
+      "reference" : "Patient/Patient-MeirLieberman-Example"
+    }
+  ],
+  "organization" : [
+    {
+      "identifier" : {
+        "system": "https://fhir.hl7.org.uk/Id/ODS-code",
+        "value": "X26"
+      }
+    }
+  ],
+  "sourceReference" : {
+    "reference" : "QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example"
+  },
+  "policy" : [
+    {
+      "uri" : "https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf"
+    }
+  ],
+  "provision" : {
+    "type" : "permit",
+    "purpose" : [
+      {
+        "system" : "http://terminology.hl7.org/CodeSystem/v3-ActReason",
+        "code" : "HRESCH"
+      }
+    ]
+  }
+}

Consent/Consent-UGRGenomicData-Example.json

@@ -0,0 +1,81 @@
+{
+  "resourceType" : "Consent",
+  "id" : "Consent-UGRGenomicData-Example",
+  "status" : "active",
+  "scope" : {
+    "coding" : [
+      {
+        "system" : "http://terminology.hl7.org/CodeSystem/consentscope",
+        "code" : "patient-privacy"
+      }
+    ]
+  },
+  "category" : [
+    {
+      "coding" : [
+        {
+          "system" : "http://loinc.org",
+          "code" : "59284-0",
+          "display" : "Consent"
+        }
+      ]
+    }
+  ],
+  "patient" : {
+    "reference" : "Patient/Patient-MeirLieberman-Example"
+  },
+  "dateTime" : "2025-04-24",
+  "performer" : [
+    {
+      "reference" : "Patient/Patient-MeirLieberman-Example"
+    }
+  ],
+  "organization" : [
+    {
+      "identifier" : {
+        "system": "https://fhir.hl7.org.uk/Id/ODS-code",
+        "value": "X26"
+      }
+    }
+  ],
+  "sourceReference" : {
+    "reference" : "QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example"
+  },
+  "policy" : [
+    {
+      "uri" : "https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf"
+    }
+  ],
+  "provision" : {
+    "type" : "permit",
+    "purpose" : [
+      {
+        "system" : "http://terminology.hl7.org/CodeSystem/v3-ActReason",
+        "code" : "POPHLTH"
+      },
+      {
+        "system" : "http://terminology.hl7.org/CodeSystem/v3-ActReason",
+        "code" : "HRESCH"
+      },
+      {
+        "system" : "http://terminology.hl7.org/CodeSystem/v3-ActReason",
+        "code" : "HOPERAT"
+      }
+    ],
+    "class" : [
+      {
+        "system" : "http://hl7.org/fhir/resource-types",
+        "code" : "DocumentReference",
+        "display" : "DocumentReference"
+      }
+    ],
+    "data" : [
+      {
+        "meaning" : "instance",
+        "reference" : {
+          "reference" : "DocumentReference/DocumentReference-PharmCAT-Example"
+        }
+      }
+    ]
+  }
+}

Observation/Observation-NoTransfusionProbandFather-Example.json

@@ -27,5 +27,5 @@
       "value": "9449307636"
     }
   },
-  "effectiveDateTime": "2023-09-15T15:00:00Z",
+  "effectiveDateTime": "2023-09-15T15:00:00Z"
 }

fhirpkg.lock.json

@@ -1,11 +1,15 @@
 {
-  "updated": "2025-05-08T09:07:12.7767319+01:00",
+  "updated": "2025-09-05T15:50:23.3766758+01:00",
   "dependencies": {
     "fhir.r4.ukcore.stu3.currentbuild": "0.0.18-pre-release",
     "hl7.fhir.r4.core": "4.0.1",
     "hl7.fhir.uv.genomics-reporting": "3.0.0-ballot",
     "hl7.terminology.r4": "5.3.0",
-    "hl7.fhir.uv.extensions.r4": "1.0.0"
+    "hl7.fhir.uv.extensions.r4": "1.0.0",
+    "ihe.iti.pcf": "1.0.0-comment",
+    "hl7.fhir.r4b.core": "4.3.0",
+    "us.nlm.vsac": "0.9.0",
+    "ihe.iti.balp": "1.1.1"
   },
   "missing": {}
 }

package.json

@@ -2,15 +2,15 @@
   "name": "uk.nhsdigital.r4.genomics",
   "description": "FHIR Genomics Implementation Guide",
   "author": "nhsdigital",
-  "fhirVersions": [
-    "4.0.1"
-  ],
-  "jurisdiction": "urn:iso:std:iso:3166:-2:GB-ENG",
   "dependencies": {
     "fhir.r4.ukcore.stu3.currentbuild": "0.0.18-pre-release",
     "hl7.fhir.r4.core": "4.0.1",
-    "hl7.fhir.uv.genomics-reporting": "3.0.0-ballot"
-  }
+    "hl7.fhir.uv.genomics-reporting": "3.0.0-ballot",
+    "ihe.iti.pcf": "1.0.0-comment"
+
+  },
+  "fhirVersions": [
+    "4.0.1"
+  ],
+  "jurisdiction": "urn:iso:std:iso:3166:-2:GB-ENG"
 }
-
-